epilepsy awareness month

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 WHAT IS NATIONAL EPILEPSY AWARENESS MONTH

National Epilepsy Awareness Month in November is an annual event to educate people about the causes and symptoms of epilepsy. One in 26 people will be diagnosed with epilepsy at some point in their life. Epilepsy is one of the least known neurological disorders, but it is the fourth most common. This month, many organizations come together to provide information on epilepsy prevention, treatment, research and resources.
HISTORY
Unfortunately, epilepsy has a long history of misunderstanding and stigma.Evidence of people suffering from epilepsy in ancient history attributed it to being possessed by spirits or demons. In fact, Hippocrates, the great Roman physician, avoided the idea that it was a supernatural phenomenon, believing that it originated in the brain, had hereditary aspects, and that its appearance in childhood also dictated how it affected the rest of the child body. the life of the individual.
Unfortunately, Hippocrates was not believed until well into the 17th century, when the notion that it was not demonic or spiritual possession finally faded. However, the stigma attached to it persists to this day. One of the goals of National Epilepsy Awareness Month is to shed the disease from its historical and false reputation.Many countries still believe it to be a sign of spirit possession, and until 1980 people with epilepsy were not allowed to marry
in the United States.
Helping you and your child overcome a diagnosis of epilepsy starts with the right care team.

patients with epilepsy faced unique challenges during the COVID-19 pandemic. There is an increased need for emergency medication to avoid emergency admissions. We've also seen patients with new-onset seizures who have also tested positive for COVID-19.

Throughout the pandemic, our Department of Neurology has remained available to these vulnerable patients, whether through in-person appointments or telemedicine visits.Boston Children's Health Physicians were fortunate to have Dr. Steven Wolf and Nurse Patricia McGoldrick welcome to our network of care the
Pediatric Epilepsy Learning Health Care System.The Boston Children's Health Physicians/Maria Fareri Children's Hospital Epilepsy Program is established to help patients in the Hudson Valley area who have limited access to comprehensive epilepsy centers. The epilepsy team consists of Dr. Steven Wolf, Dr. Philip Overby, Dr. Shahid Parvez, Dr.Carrie Muh, Dr. Mike Tobias, Dr. Avi Mohan, nurses Patricia McGoldrick and Cari Martone and Dr. Suzanne Braniecki, neuropsychologist.

Together, the team provides admission to the Epilepsy Monitoring Unit, epilepsy surgeries ranging from placement of vagus nerve stimulators to stereo EEG recordings, laser ablation, placement of sensitive neurostimulators, and resection surgeries.We also have robotic guidance systems and are developing a ketogenic diet program. We are equipped with board-certified EEG technicians and laboratories.

Helping Children and Teens with Epilepsy

One of the best things you can do for a child with epilepsy is to take control and get organized. Be your child's advocate. Parents learn the ins and outs of epilepsy while caring for their child, but it's important to keep doctors' names, numbers, and emergency information in separate places.Let family members and babysitters know where they are based. Talk to your friends' school and parents before play dates. Have a seizure action plan.

If you have concerns about your child's health or development, or would like more information about epilepsy medications, diet and epilepsy surgery, contact the BCHP's Pediatric Neurology Unit.

General epilepsy
Epilepsy is a brain disorder that affects people of all ages
A person with epilepsy is prone to spontaneous and recurrent seizures
It is estimated that 65 million people worldwide suffer from epilepsy and 80% of them live in developing countries
About 3% up 3.5% of Australians will develop epilepsy at some point in their lives
While all people with epilepsy experience seizures, not all people who have seizures have epilepsy. Some seizures can occur after acute brain injury (eg, head injury) or toxic or systemic illness (eg, febrile seizures, drug overdose, alcohol withdrawal) and do not tend to recur (unless the underlying cause recurs). ). These are usually considered "single" seizures.
More than 250,000 Australians are currently living with epilepsy.Lifestyle
Epilepsy is more than just seizures. Epilepsy can have significant social and psychological effects, often affecting independence, learning, employment opportunities, relationships, mental health and quality of life
People with epilepsy often face social stigma, discrimination and exclusion. A crucial part of reducing this stigma is raising public and professional awareness.
People with epilepsy can obtain a driver's license if their seizures are controlled with medication or if they meet the conditions and guidelines set by traffic authorities.
Epilepsy is not a mental illness, but people with epilepsy have an increased risk of anxiety and depression.Treatment
With treatment, up to two-thirds of people with epilepsy can be seizure-free
About three-quarters of people in developing countries are not receiving the treatment they need
After 2 to 5 years of successful treatment and no seizures, about 70% of children can have medication and 60% of adults are weaned without subsequent relapse
A small percentage of people may be eligible for epilepsy surgery
More than half of people who undergo surgery are long-term seizure free. Many others have lesser or less severe seizures after surgery.
Other treatment options for people unable to control seizures with medication include
vagus nerve stimulation,
nutritional therapies,
deep brain stimulation.

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